Palliative and Support Care

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520 publications

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Positive psychology and palliative care: A call for an integrative approach.
Bernard M., Arantzamendi M. Palliative & supportive care. Peer-reviewed.
 
Making Conscientious Decisions: Engaging in Venous Leg Ulcer Self-Management Following Nurse-Led Patient Education.
Bobbink P., Gschwind G., Larkin P., Probst S. Qualitative health research. Peer-reviewed.
"Life goes on": Perspectives on the will to live from residents of Swiss long-term care facilities.
Bornet M.A., Jones L., Jox R.J., Bernard M., Ruedin S., Borasio G.D., Rubli Truchard E. Palliative & supportive care. Peer-reviewed.
Allocation of Treatment Slots in Elective Mental Health Care-Are Waiting Lists the Ethically Most Appropriate Option?
Haustein T., Jox R.J. The American journal of bioethics pp. 1-10. Peer-reviewed.
 
Current collaboration between palliative care and neurology: a survey of clinicians in Europe.
Oliver D., Borasio G.D., Veronese S., Voltz R., Lorenzl S., Hepgul N. BMJ supportive & palliative care. Peer-reviewed.
 
Person Profile Dementia Intervention in Long-Term Care: A Stepped-Wedge Cluster-Randomized Trial.
Spichiger F., Koppitz A.L., Riese F., Kipfer S., Nagl-Cupal M., Büscher A., Volken T., Larkin P., Meichtry A. Journal of the American Medical Directors Association. Peer-reviewed.
 
Lessons from a negative gene therapy trial for Duchenne muscular dystrophy.
Spuler S., Borasio G.D., Grittner U. Nature medicine. Peer-reviewed.
Patient altruism at the end of life: A scoping review.
Sterie A.C., Borasio G.D., Deml M.J., Gamondi C., Jox R.J., Larkin P., Trombert A., Rubli Truchard E., Bernard M. Palliative & supportive care. Peer-reviewed.
Clinical Practice Guidelines on Palliative Sedation Around the World: A Systematic Review.
Tomczyk M., Jaques C., Jox R.J., 2025/01. Journal of palliative care, 40 (1) pp. 58-71. Peer-reviewed.
 
A Thematic Analysis of Perceptions and Experiences Regarding Clinical Hypnosis from Palliative Care Health Professionals, Patients, and Their Relatives.
Sterie A.C., Larkin P., Guyaz C., Berna C., Lüthi F.T., 2024/11. Journal of palliative medicine, 27 (11) pp. 1497-1511. Peer-reviewed.
Introducing "A Question That Might, Perhaps, Scare you": How Geriatric Physicians Approach the Discussion About Cardiopulmonary Resuscitation with Hospitalized Patients.
Sterie A.C., Weber O., Jox R.J., Rubli Truchard E., 2024/11. Health communication, 39 (12) pp. 2551-2560. Peer-reviewed.
 
Equity in Clinical Care and Research Involving Persons with Disorders of Consciousness.
Rubin M.A., Lewis A., Creutzfeldt C.J., Shrestha G.S., Boyle Q., Illes J., Jox R.J., Trevick S., Young M.J., Curing Coma Campaign and its contributing members, 2024/10. Neurocritical care, 41 (2) pp. 345-356. Peer-reviewed.
 
The experience of hope in dyads living with advanced chronic illness in Portugal: a longitudinal mixed-methods study.
Befecadu FBP, Gonçalves M., Fernandes C., Laranjeira C., Dos Anjos Dixe M., Querido A., Pautex S., Larkin P.J., Da Rocha Rodrigues G., 2024/08/14. BMC palliative care, 23 (1) p. 207. Peer-reviewed.
 
Assisted dying.
Larkin P.J., 2024/07/02. International journal of palliative nursing, 30 (7) pp. 367-368. Peer-reviewed.
Potentially Perilous Preference Parrots: Why Digital Twins Do Not Respect Patient Autonomy.
Starke G., Jox R.J., 2024/07. The American journal of bioethics, 24 (7) pp. 43-45. Peer-reviewed.
 
Application and challenges of using a Constructivist Grounded Theory methodology to address an undertheorized clinical challenge: A discussion paper.
Bobbink P., Larkin P., Probst S., 2024/06. International journal of nursing studies advances, 6 p. 100199. Peer-reviewed.
Correction: PANDORA dyadic project: hope, spiritual well-being and quality of life of dyads of patients with chronic obstructive pulmonary disease in Switzerland – a multicentre longitudinal mixed-methods protocol study .
Befecadu FBP, Stirnemann J., Guerreiro I., Fusi-Schmidhauser T., Jaksic C., Larkin PJ, Rodrigues G da R., Pautex S., 2024/06. BMJ Open, 14 (6) pp. e068340corr1.
 
The association between living arrangements and health-related quality of life in Korean older people: a nationwide repeated cross-sectional study.
Park E., Larkin P., Han Z.A., 2024/06. Osong public health and research perspectives, 15 (3) pp. 221-228. Peer-reviewed.
Interdisciplinary research approach based on a mixed-methods design to explore patient altruism at the end of life: a study protocol.
Bernard M., Gamondi C., Sterie A.C., Larkin P.J., Jox R.J., Borasio G.D., 2024/05/10. BMJ open, 14 (5) pp. e085632. Peer-reviewed.
Future policy and research for advance care planning in dementia: consensus recommendations from an international Delphi panel of the European Association for Palliative Care.
Nakanishi M., Martins Pereira S., Van den Block L., Parker D., Harrison-Dening K., Di Giulio P., In der Schmitten J., Larkin P.J., Mimica N., Sudore R.L. et al., 2024/05. The lancet. Healthy longevity, 5 (5) pp. e370-e378. Peer-reviewed.
 
Transidentités : pertinence de l’implication des psychiatres [Transidentites : the relevance of involving psychiatrists]
Michaud L., Stiefel F., Jox R.J., Pamfile D., Brovelli S., Pécoud P., Plessen K.J., Morisod Harari M., 2024/05/01. Revue Médicale Suisse, 20 (872) pp. 894-898. Peer-reviewed.
 
Irrelevant Interests? A Qualitative Study Into How German Family Surrogates of Persons Living With Dementia Fulfill Their Legal Role as Advocates of an Advance Directive.
Fischer J., Roßmeier C., Hartmann J., Riedl L., Tensil M., Diehl-Schmid J., Jox R.J., 2024/04/01. The Gerontologist, 64 (4). Peer-reviewed.
Impact of confrontation to patient suffering and death on wellbeing and burnout in professionals: a cross-sectional study.
Delafontaine A.C., Anders R., Mathieu B., Salathé C.R., Putois B., 2024/03/15. BMC palliative care, 23 (1) p. 74. Peer-reviewed.
 
Cognitive abilities and engagement in advance care planning among older adults: Results of a Swiss populational study.
Reinecke R., Vilpert S., Borasio G.D., Jox R.J., Maurer J., 2024/03. Psychology and aging, 39 (2) pp. 199-207. Peer-reviewed.
End-of-life health literacy, knowledge and behaviours towards advance care planning among older adults: cross-sectional evidence from Switzerland
Meier Clément, Vilpert Sarah, Wieczorek Maud, Borrat-Besson Carmen, Jox Ralf J, Maurer Jürgen, 2024/03. BMJ Public Health, 2 (1) pp. e000600. Peer-reviewed.
The state of transience, and its influence on the wish to die of advanced disease patients: insights from a qualitative phenomenological study.
Belar A., Arantzamendi M., Larkin P., Saralegui I., Santesteban Y., Alonso N., Martínez M., Centeno C., 2024/02/26. BMC palliative care, 23 (1) p. 57. Peer-reviewed.
Palliative sedation - revised recommendations.
Beauverd M., Mazzoli M., Pralong J., Tomczyk M., Eychmüller S., Gaertner J., 2024/02/15. Swiss medical weekly, 154 p. 3590. Peer-reviewed.
 
Médecin et patient face à l’arrêt de la dialyse : la fatigue de continuer [The end of dialysis: the weariness to carry on]
Maccaferri G.E., Banava E., Duc L., Gamondi C., Fekih Ghorbel Y., Solomon A.R., 2024/02/14. Revue medicale suisse, 20 (861) pp. 348-351. Peer-reviewed.
"What Is the Most Important to Them?" Swiss Health Care Proxies, Nurses, and Physicians Discuss Planning Practices for Aged Care Residents Who No Longer Have Medical Decision-Making Capacity.
Jones L., Rhyner F., Rutz Voumard R., Figari Aguilar F., Rubli Truchard E., Jox R.J., 2024/02. Gerontology, 70 (2) pp. 173-183. Peer-reviewed.
Consensus definition of advance care planning in dementia: A 33-country Delphi study.
van der Steen J.T., Nakanishi M., Van den Block L., Di Giulio P., Gonella S., In der Schmitten J., Sudore R.L., Harrison Dening K., Parker D., Mimica N. et al., 2024/02. Alzheimer's & dementia, 20 (2) pp. 1309-1320. Peer-reviewed.
 
Qualitative Evaluation of a Pilot Physician Training Program in Long-Term Care Facilities in Switzerland.
Truchard E.R., Jones L., Bosisio F., Bizzozzero T., Ronga A., Jox R.J., Büla C., 2024/02. Journal of the American Medical Directors Association, 25 (2) pp. 275-277.e1. Peer-reviewed.
Palliative sedation: ethics in clinical practice guidelines - systematic review.
Tomczyk M., Jaques C., Jox R.J., 2024/01/08. BMJ supportive & palliative care, 13 (e3) pp. e651-e663. Peer-reviewed.
'Thank you for loving me': A qualitative study on perceptions of gratitude and their effects in palliative care patients and relatives.
Poncin E., Bovet E., Tamches E., Cantin B., Pralong J., Althaus B., Borasio G.D., Bernard M., 2024/01. Palliative medicine, 38 (1) pp. 110-120. Peer-reviewed.
Implementation of the ID-PALL Assessment Tool for Palliative Care Needs: A Feasibility and Prevalence Study in a Tertiary Hospital.
Teike Lüthi F., Bernard M., Behaghel G., Burgniard S., Larkin P., Borasio G.D., 2024. Palliative medicine reports, 5 (1) pp. 350-358. Peer-reviewed.
Validation of the Spanish version of the five-item General Self-Efficacy (GSE) scale in a sample of nursing students: Evidence of validity, reliability, longitudinal invariance and changes in general self-efficacy and resilience in a two-wave cross-lagged panel model.
Galiana L., Sánchez-Ruiz J., Gómez-Salgado J., Larkin P.J., Sansó N., 2024/01. Nurse education in practice, 74 p. 103865. Peer-reviewed.
 
Voices of the Future: Junior Physicians' Experiences of Discussing Life-Sustaining Treatments With Hospitalized Patients.
Müller M.A., Gamondi C., Truchard E.R., Sterie A.C., 2024. Journal of medical education and curricular development, 11 p. 23821205241277334. Peer-reviewed.
Overestimation of Survival Rates of Cardiopulmonary Resuscitation Is Associated with Higher Preferences to Be Resuscitated: Evidence from a National Survey of Older Adults in Switzerland
Meier Clément, Vilpert Sarah, Wieczorek Maud, Borasio Gian Domenico, Jox Ralf J., Maurer Jürgen, 2023/12/29. Medical Decision Making.
 
Les soins palliatifs nous concernent tous.
Pautex S., Gamondi C., 2023/12/20. Revue medicale suisse, 19 (855) p. 2379. Peer-reviewed.
 
Ethics Along the Continuum of Research Involving Persons with Disorders of Consciousness.
Lewis A., Young M.J., Rohaut B., Jox R.J., Claassen J., Creutzfeldt C.J., Illes J., Kirschen M., Trevick S., Fins J.J. et al., 2023/12. Neurocritical care, 39 (3) pp. 565-577. Peer-reviewed.
Perceptions, connaissances et compétences de santé en matière de soins de fin de vie chez les adultes âgés en Suisse
Meier Clément, Vilpert Sarah, Borrat-Besson Carmen, Maurer Jürgen, Jox Ralf J., 2023/11/06. pp. 161-172 dans Les soins palliatifs à travers les humanités médicales, Georg éditeur.
 
Intervention de gratitude chez les patient·e·s en soins palliatifs et leurs proches : une étude pilote
Poncin Emmanuelle, Bovet Emilie, Pittet Fidelia, Borasio Gian Domenico, Bernard Mathieu, 2023/11. pp. 43-54 dans Tomczyk Martina, Bernard Mathieu, Jox Ralf J (eds.) Les soins palliatifs à travers les humanités médicales : au confluent des disciplines, des approches et des pratiques cliniques, Chêne-Bourg, Georg.
 
Of Slopes and Ropes: Learning from the Diversity of European Regulations of Assisted Dying.
Jox R.J., 2023/11. The American journal of bioethics, 23 (11) pp. 84-87. Peer-reviewed.
Advance Care Planning: A Story of Trust Within the Family.
Iunius L.A., Vilpert S., Meier C., Jox R.J., Borasio G.D., Maurer J., 2023/10. Journal of applied gerontology, 43 (4) pp. 349-362. Peer-reviewed.
'How is it possible that at times we can be physicians and at times assistants in suicide?' Attitudes and experiences of palliative care physicians in respect of the current legal situation of suicide assistance in Switzerland.
Tomczyk M., Andorno R., Jox R.J., 2023/09. Journal of medical ethics, 49 (9) pp. 594-601. Peer-reviewed.
 
Spiritual Care: The Everyday Work of Chaplains.
Poncin Emmanuelle, 2023/09. Review of Religious Research, 65 (3) pp. 416-417.
 
Advance Care Planning in Switzerland: Chances and challenges of delivering high-quality ACP in a small high-income, multilingual, federally organized country.
Clavien C., Ehlers U., J Jox R., Karzig I., Krones T., Loupatzatzis B., Monteverde S., Theile G., 2023/08. Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 180 pp. 115-120. Peer-reviewed.
Inter-rating reliability of the Swiss easy-read integrated palliative care outcome scale for people with dementia.
Spichiger F., Volken T., Larkin P., Meichtry A.A., Koppitz A., 2023/08. PloS one, 18 (8) pp. e0286557. Peer-reviewed.
 
Should Palliative Care Teams be Involved in Medical Assisted Dying?
Gerson S.M., Gamondi C., Wiebe E., Deliens L., 2023/08. Journal of pain and symptom management, 66 (2) pp. e233-e237. Peer-reviewed.
Social robots in care homes in French-speaking Switzerland: A qualitative and reflective study
Perruchoud S., Banwell N., Jox Ralf R., Eggert N., 2023/08. Ethics, Medicine and Public Health, 29 p. 100918.
 
Older adults' medical preferences for the end of life: a cross-sectional population-based survey in Switzerland.
Vilpert S., Meier C., Berche J., Borasio G.D., Jox R.J., Maurer J., 2023/07/24. BMJ open, 13 (7) pp. e071444. Peer-reviewed.
 
Do They Have a Choice? Surrogate Decision-Making After Severe Acute Brain Injury.
Goss A.L., Voumard R.R., Engelberg R.A., Curtis J.R., Creutzfeldt C.J., 2023/07/01. Critical care medicine, 51 (7) pp. 924-935. Peer-reviewed.
ECMO as a Palliative Bridge to Death.
Rutz Voumard R., Ltaief Z., Liaudet L., Jox R.J., 2023/06. The American journal of bioethics, 23 (6) pp. 35-38. Peer-reviewed.
 
Response to Shalom J., Conundrum of Percutaneous Endoscopic Gastrostomy Insertion for Patients with Advanced Dementia and Dysphagia (DOI: 10.1089/JPM.2022.0524).
Borasio G.D., Jox R.J., 2023/06. Journal of palliative medicine, 26 (6) p. 746. Peer-reviewed.
PANDORA dyadic project: hope, spiritual well-being and quality of life of dyads of patients with chronic obstructive pulmonary disease in Switzerland - a multicentre longitudinal mixed-methods protocol study.
Baptista Peixoto Befecadu F., Stirnemann J., Guerreiro I., Fusi-Schmidhauser T., Jaksic C., Larkin P.J., da Rocha Rodrigues G., Pautex S., 2023/05/12. BMJ open, 13 (5) pp. e068340. Peer-reviewed.
 
“I live my own little life”: Opinion of nursing home residents concerning interventions to improve their will to live
Ruedin Samira, Rubli Truchard Eve, Borasio Gian Domenico, Bernard Mathieu, Jox Ralf J., Bornet Marc-Antoine, 2023/05/10., 7e Congrès de printemps de la Société suisse de médecine interne générale, Bâle, 2023 p. 9 dans Primary and Hospital Care. Peer-reviewed.
The involvement of palliative care with neurology - a comparison of UK, Switzerland and Italy.
Oliver D., Baker I., Borasio G.D., Cras P., Faull C., Hepgul N., Lorenzl S., Stockdale C., de Visser M., Vanopdenbosch L. et al., 2023/05. Amyotrophic lateral sclerosis & frontotemporal degeneration, 24 (3-4) pp. 256-262. Peer-reviewed.
Giving and receiving thanks: a mixed methods pilot study of a gratitude intervention for palliative patients and their carers.
Bernard M., Poncin E., Bovet E., Tamches E., Cantin B., Pralong J., Borasio G.D., 2023/04/26. BMC palliative care, 22 (1) p. 52. Peer-reviewed.
"More life and more days"-patient and care characteristics in a specialized acute pediatric palliative care inpatient unit.
Stoesslein S., Gramm J.D., Bender H.U., Müller P., Rabenhorst D., Borasio G.D., Führer M., 2023/04. European journal of pediatrics, 182 (4) pp. 1847-1855. Peer-reviewed.
"Do Not Protect Us, Train Us."-Swiss Healthcare Students' Attitudes Toward Caring for Terminally Ill Patients.
Juvet T.M., Bornet M.A., Desbiens J.F., Tapp D., Roos P., 2023/03. Omega, 86 (4) pp. 1190-1211. Peer-reviewed.
 
Methods for informing people with amyotrophic lateral sclerosis/motor neuron disease of their diagnosis.
Bongioanni P., Borasio G.D., Oliver D.J., Romagnoli A., Kapitza K.P., Sidle K., Tramonti F., 2023/02/22. The Cochrane database of systematic reviews, 2 (2) pp. CD007593. Peer-reviewed.
"If I Become a Vegetable, Then no": A Thematic Analysis of How Patients and Physicians Refer to Prognosis When Discussing Cardiopulmonary Resuscitation.
Sterie A.C., Castillo C., Jox R.J., Büla C.J., Rubli Truchard E., 2023. Gerontology & geriatric medicine, 9 p. 23337214231208824. Peer-reviewed.
Development and validation of a subjective end-of-life health literacy scale.
Meier C., Vilpert S., Wieczorek M., Borrat-Besson C., Jox R.J., Maurer J., 2023. PloS one, 18 (10) pp. e0292367. Peer-reviewed.
 
Dimensions of Researcher Vulnerability in Qualitative Health Research and Recommendations for Future Practice
Sterie Anca-Cristina, Potthoff Sarah, Erdmann Anke, Burner-Fritsch Isabel Sophie, Oyine Aluh Deborah, Schneiders Mira L., 2023/01. International Journal of Qualitative Methods, 22.
 
Participation within multiparty conversation - Responses to indirect complaints about a co-present participant
Wilkinson Ray, Bouchard Julie, Gonzalez Temer Veronica, Kamunen Antti, Katila Julia, Munhoz Xavier Carla Cristina, Sterie Anca-Cristina, 2023. p. 22 dans New Perspectives on Goffman in Language and Interaction, Routledge.
 
Setting the agenda for health communication research: Topics and methodologies
Finset Arnstein, Papageorgiou Alexia, Menichetti Julia, Sterie Anca-Cristina, Yuan Siyang, van Vliet Liesbeth, 2023/01. Patient Education and Counseling, 106 pp. 208-209.
 
Should continuous deep sedation until death be legally regulated in Switzerland? An exploratory study with palliative care physicians.
Tomczyk M., Andorno R., Jox R.J., 2023. Palliative care and social practice, 17 p. 26323524231219509. Peer-reviewed.
Pain Interventions for people with dementia: a quasi-experimental study.
Spichiger F., Volken T., Bosshard G., Zigan N., Blanc G., Büscher A., Nagl-Cupal M., Bernard M., Rubli Truchard E., Larkin P. et al., 2022/12/29. BMC palliative care, 21 (1) p. 228. Peer-reviewed.
 
Full GSA 2022 Abstract Book PDF
Meier Clément, Vilpert Sarah, Borrat-Besson Carmen, Borasio Gian Domenico, Jox Ralf, Maurer Jürgen, 2022/12/20. Innovation in Aging, 6 (Supplement_1) pp. NP-NP.
 
Adding life to years: association between the will to live and survival among nursing home residents in Switzerland
Bornet Marc-Antoine, Jox Ralf J., Bernard Mathieu, Pasquier Jérôme, Borasio Gian Domenico, Rubli Truchard Eve, 2022/12/05., 18th Congress of the European Geriatric Medicine Society pp. S341 dans Eur Geriatr Med. Peer-reviewed.
Posttraumatic growth in palliative care patients and its associations with psychological distress and quality of life.
Bernard M., Poncin E., Althaus B., Borasio G.D., 2022/12. Palliative & supportive care, 20 (6) pp. 846-853. Peer-reviewed.
Wish to Die Among Residents of Swiss Long-Term Care Facilities: A Multisite Cross-Sectional Study.
Rubli Truchard E., Monod S., Bula C.J., Dürst A.V., Levorato A., Mazzocato C., Münzer T., Pasquier J., Quadri P., Rochat E. et al., 2022/12. Journal of the American Medical Directors Association, 23 (12) pp. 1935-1941. Peer-reviewed.
 
'We Have Guidelines, but We Can Also Be Artists': Neurologists Discuss Prognostic Uncertainty, Cognitive Biases, and Scoring Tools.
Tolsa L., Jones L., Michel P., Borasio G.D., Jox R.J., Rutz Voumard R., 2022/11/21. Brain sciences, 12 (11) p. 1591. Peer-reviewed.
Goals of care changes after acute ischaemic stroke: decision frequency and predictors.
Hausammann R., Maslias E., Amiguet M., Jox R.J., Borasio G.D., Michel P., 2022/11/15. BMJ supportive & palliative care, 14 (1). Peer-reviewed.
The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.
Hein K., Flaig F., Schramm A., Borasio G.D., Führer M., 2022/10/13. Children, 9 (10) p. 1555. Peer-reviewed.
 
Public health palliative care: a 'new' message for palliative care nursing.
Larkin P., 2022/10/02. International journal of palliative nursing, 28 (10) pp. 451-452. Peer-reviewed.
 
Response to Cleary et al. re MASCC evidence-based recommendations for the management of malignant bowel obstruction.
Madariaga A., Lau J., Dzierżanowski T., Ghoshal A., Larkin P., Sobocki J., Dickman A., Furness K., Fazelzad R., Crawford G.B. et al., 2022/10. Supportive care in cancer, 30 (10) pp. 7825-7826. Peer-reviewed.
Decision-making ethics in regards to life-sustaining interventions: when physicians refer to what other patients decide.
Sterie A.C., Jox R.J., Rubli Truchard E., 2022/09/02. BMC medical ethics, 23 (1) p. 91. Peer-reviewed.
How should health care providers inform about palliative sedation? A qualitative study with palliative care professionals.
Cocker A., Singy P., Jox R.J., 2022/09. European journal of cancer care, 31 (5) pp. e13602. Peer-reviewed.
 
Dimensions of end-of-life preferences in the Swiss general population aged 55+
Borrat-Besson C., Vilpert S., Jox R.J., Borasio G.D., Maurer J., 2022/08/02. Age and ageing, 51 (8) pp. afac162. Peer-reviewed.
 
Ethics Priorities of the Curing Coma Campaign: An Empirical Survey.
Lewis A., Claassen J., Illes J., Jox R.J., Kirschen M., Rohaut B., Trevick S., Young M.J., Fins J.J., and the Curing Coma Campaign and its contributing members, 2022/08. Neurocritical care, 37 (1) pp. 12-21. Peer-reviewed.
 
Experience of hope in adult patients with advanced chronic disease and their informal caregivers: a qualitative systematic review protocol.
Befecadu FBP, Perrenoud B., Behaghel G., Jaques C., Pautex S., Rodrigues MGDR, Larkin P.J., 2022/08/01. JBI evidence synthesis, 20 (8) pp. 2025-2031. Peer-reviewed.
 
Prognosis Predictions by Families, Physicians, and Nurses of Patients with Severe Acute Brain Injury: Agreement and Accuracy.
Kiker W.A., Rutz Voumard R., Plinke W., Longstreth W.T., Curtis J.R., Creutzfeldt C.J., 2022/08. Neurocritical care, 37 (1) pp. 38-46. Peer-reviewed.
Ethical challenges in palliative sedation of adults: protocol for a systematic review of current clinical practice guidelines.
Tomczyk M., Jaques C., Jox R.J., 2022/07/01. BMJ open, 12 (7) pp. e059189. Peer-reviewed.
 
Les humanités médicales integrées dans un hôpital universitaire
Jox Ralf, Sterie Anca-Cristina, Rubli Truchard Eve, 2022/06/01. pp. 119-132 dans Langues, médecine et société. Mélanges en l’honneur de Pascal Singy chap. 9, Editions Lambert-Lucas.
MASCC multidisciplinary evidence-based recommendations for the management of malignant bowel obstruction in advanced cancer.
Madariaga A., Lau J., Ghoshal A., Dzierżanowski T., Larkin P., Sobocki J., Dickman A., Furness K., Fazelzad R., Crawford G.B. et al., 2022/06. Supportive care in cancer, 30 (6) pp. 4711-4728. Peer-reviewed.
Suffering is not enough: Assisted dying for people with mental illness.
Trachsel M., Jox R.J., 2022/06. Bioethics, 36 (5) pp. 519-524. Peer-reviewed.
Views on a "Good Death": End-of-Life Preferences and Their Association With Socio-Demographic Characteristics in a Representative Sample of Older Adults in Switzerland.
Borrat-Besson C., Vilpert S., Borasio G.D., Maurer J., 2022/06. Omega, 85 (2) pp. 409-428. Peer-reviewed.
 
"Just Something Human": Older Swiss Nursing Home Residents Discuss their Will to Live
Bornet Marc-Antoine, Jones Laura, Rubli Truchard Eve, Bernard Mathieu, Borasio Gian Domenico, Jox Ralf J., 2022/05/10., 12th World Research Congress of the European Association for Palliative Care p. 31 dans Palliative Medicine. Peer-reviewed.
 
Perceptions and Knowledge Regarding Medical Situations at the End of Life among Older Adults in Switzerland.
Meier C., Vilpert S., Borasio G.D., Maurer J., Jox R.J., 2022/05. Journal of palliative medicine, 26 (1) pp. 35-46. Peer-reviewed.
Talking about chronic pain in family settings: a glimpse of older persons' everyday realities.
Merminod G., Weber O., Semlali I., Terrier A., Decosterd I., Rubli Truchard E., Singy P., 2022/04/23. BMC geriatrics, 22 (1) p. 358. Peer-reviewed.
"Do you want us to try to resuscitate?": Conversational practices generating patient decisions regarding cardiopulmonary resuscitation.
Sterie A.C., Weber O., Jox R.J., Rubli Truchard E., 2022/04. Patient education and counseling, 105 (4) pp. 887-894. Peer-reviewed.
 
Fighting racism in research - CORRIGENDUM.
Goldzweig G., Applebaum A., Borasio G.D., Cho J., Chochinov H.M., Ishida M., Loscalzo M., Breitbart W., 2022/04. Palliative & supportive care, 20 (2) p. 303. Peer-reviewed.
 
How to Open the Door: A Qualitative, Observational Study on Initiating Advance Care Discussions with Parents in Pediatric Palliative Care.
Daxer M., Monz A., Hein K., Heitkamp N., Knochel K., Borasio G.D., Führer M., 2022/04. Journal of palliative medicine, 25 (4) pp. 562-569. Peer-reviewed.
View Across the Pond: Insights from a National Survey on Clinical Ethics Services in Switzerland.
Jox R.J., Porz R.C., 2022/04. The American journal of bioethics, 22 (4) pp. 50-52. Peer-reviewed.
Health literacy among older adults in Switzerland: cross-sectional evidence from a nationally representative population-based observational study.
Meier C., Vilpert S., Borrat-Besson C., Jox R.J., Maurer J., 2022/03/28. Swiss medical weekly, 152 pp. w30158. Peer-reviewed.
Instruments for the identification of patients in need of palliative care in the hospital setting: a systematic review of measurement properties.
Teike Lüthi F., MacDonald I., Rosselet Amoussou J., Bernard M., Borasio G.D., Ramelet A.S., 2022/03/01. JBI evidence synthesis, 20 (3) pp. 761-787. Peer-reviewed.
Identifier les patients nécessitant des soins palliatifs généraux ou spécialisés grâce à ID-PALL [Identifying patients in need of general or specialised palliative care with ID-PALL]
Teike Lüthi F., Bernard M., Gamondi C., Ramelet A.S., Borasio G.D., 2022/02/16. Revue medicale suisse, 18 (769) pp. 288-291. Peer-reviewed.
Integrated Palliative Outcome Scale for People with Dementia: easy language adaption and translation.
Spichiger F., Keller Senn A., Volken T., Larkin P., Koppitz A., 2022/02/15. Journal of patient-reported outcomes, 6 (1) p. 14. Peer-reviewed.
 
Participatory Development of a Modular Advance Care Planning Program in Pediatric Palliative Care (MAPPS).
Knochel K., Zaimovic V., Gatzweiler B., Hein K.K., Heitkamp N., Monz A., Reimann D., Borasio G.D., Führer M., 2022/02. Journal of pain and symptom management, 63 (2) pp. 189-198. Peer-reviewed.
A training programme for medical students in providing spiritual care to people with advanced diseases and their loved ones: A case study from the Collegium Medicum in Bydgoszcz, Nicolaus Copernicus University in Toruń, Poland.
Fopka-Kowalczyk M., Groves R., Larkin P., Krajnik M., 2022. Frontiers in cardiovascular medicine, 9 p. 909959. Peer-reviewed.
Attitudes of university hospital staff towards in-house assisted suicide.
Gamondi C., Gayet-Ageron A., Borasio G.D., Hurst S., Jox R.J., Ricou B., 2022. PloS one, 17 (10) pp. e0274597. Peer-reviewed.
 
Behandlung von Patienten mit chronischen Bewusstseinsstörungen
Jox Ralf, 2022. pp. 403-412 dans Praxisbuch Ethik in der Medizin. 2., aktualisierte und erweiterte Auflage, Medizinisch Wissenschaftliche Verlagsgesellschaft.
 
Entscheidungen bei einwilligungsunfähigen Patienten.
Jox Ralf, 2022. pp. 169-176 dans Praxisbuch Ethik in der Medizin. 2., aktualisierte und erweiterte Auflage., Medizinisch Wissenschaftliche Verlagsgesellschaft .
 
Entscheidungen über lebensverlängernde Maßnahmen.
Jox Ralf, 2022. pp. 177-184 dans Praxisbuch Ethik in der Medizin. 2., aktualisierte und erweiterte Auflage. , : Medizinisch Wissenschaftliche Verlagsgesellschaft.
 
Ernährung und Flüssigkeitsversorgung.
Jox Ralf, 2022. pp. 195-202 dans Praxisbuch Ethik in der Medizin. 2., aktualisierte und erweiterte Auflage., Medizinisch Wissenschaftliche Verlagsgesellschaft .
Exercising Hope in Palliative Care Is Celebrating Spirituality: Lessons and Challenges in Times of Pandemic.
Laranjeira C., Baptista Peixoto Befecadu F., Da Rocha Rodrigues M.G., Larkin P., Pautex S., Dixe M.A., Querido A., 2022. Frontiers in psychology, 13 p. 933767. Peer-reviewed.
 
Gratitud en los pacientes de cuidados paliativos y sus familiares : donde estamos ahora ?
Bernard Mathieu, 2022. pp. 189-205 dans Gratitud y cuidados paliativos: Un diálogo entre filósofos y clínicos, Ediciones Universidad de Navarra.
 
Historical Development of Clinical Ethics Consultation in Europe
Jox Ralf, Reiter-Theil Stella, 2022. pp. 47-54 dans Philosophy and Medicine, Springer International Publishing.
Knowledge Gaps in End-of-Life Care and Planning Options Among Older Adults in Switzerland.
Vilpert S., Borasio G.D., Maurer J., 2022. International journal of public health, 67 p. 1604676. Peer-reviewed.
 
Les humanités médicales intégrées dans un hôpital universitaire
Sterie A, Jox RJ, Rubli Truchard E, 2022. dans Langues, médecine et société : Mélanges en l’honneur de Pascal Singy, Lambert Lucas, coll. Médecine et Langage.
 
Palliative Care Professionals' Inner Life: Exploring the Mediating Role of Self-Compassion in the Prediction of Compassion Satisfaction, Compassion Fatigue, Burnout and Wellbeing.
Galiana L., Sansó N., Muñoz-Martínez I., Vidal-Blanco G., Oliver A., Larkin P.J., 2022/01. Journal of pain and symptom management, 63 (1) pp. 112-123. Peer-reviewed.
Postgraduate nursing students' experiences in providing frontline and backstage care during the Covid-19 pandemic: A qualitative study.
Ramelet A.S., Befecadu FBP, Eicher M., Larkin P., Horsch A., 2022. Journal of professional nursing, 39 pp. 165-170. Peer-reviewed.
 
Selbstbestimmung im Sterben - Fürsoge zum Leben. Ein verfassungskonformer Gesetzesvorschlag zur Regelung des assistierten Suizids
Wiesing U, Jox RJ, Rubli Truchard E, 2022. pp. 169-178 dans Assistierte Suizid. Ein interdisziplinärer Austausch zu Fragen eines selbstbestimmung Todes., Berliner Wissenschafts-Verlag.
 
Effectiveness of a nurse-delivered (FOCUS+) and a web-based (iFOCUS) psychoeducational intervention for people with advanced cancer and their family caregivers (DIAdIC): study protocol for an international randomized controlled trial.
Matthys O., De Vleminck A., Dierickx S., Deliens L., Van Goethem V., Lapeire L., Groenvold M., Lund L., Arnfeldt C.M., Sengeloev L. et al., 2021/12/28. BMC palliative care, 20 (1) p. 193. Peer-reviewed.
ID-PALL: An Instrument to Help You Identify Patients in Need of Palliative Care.
Teike Lüthi F., Bernard M., Gamondi C., Ramelet A.S., Borasio G.D., 2021/11. Praxis, 110 (15) pp. 839-844. Peer-reviewed.
Will to Live in Older Nursing Home Residents: A Cross-Sectional Study in Switzerland.
Bornet M.A., Rubli Truchard E., Bernard M., Pasquier J., Borasio G.D., Jox R.J., 2021/11. Journal of pain and symptom management, 62 (5) pp. 902-909. Peer-reviewed.
 
Implementing advance care planning in early dementia care: results and insights from a pilot interventional trial.
Bosisio F., Sterie A.C., Rubli Truchard E., Jox R.J., 2021/10/19. BMC geriatrics, 21 (1) p. 573. Peer-reviewed.
Assessment of Discordance Between Physicians and Family Members Regarding Prognosis in Patients With Severe Acute Brain Injury.
Kiker W.A., Rutz Voumard R., Andrews LIB, Holloway R.G., Brumback L.C., Engelberg R.A., Curtis J.R., Creutzfeldt C.J., 2021/10/01. JAMA network open, 4 (10) pp. e2128991. Peer-reviewed.
Evaluating the specialist palliative care clinical nurse specialist role in an acute hospital setting: a mixed methods sequential explanatory study.
Connolly M., Ryder M., Frazer K., Furlong E., Escribano T.P., Larkin P., Carruthers E., McGuigan E., 2021/09/03. BMC palliative care, 20 (1) p. 134. Peer-reviewed.
Measurement Properties of ID-PALL, A New Instrument for the Identification of Patients With General and Specialized Palliative Care Needs.
Teike Lüthi F., Bernard M., Vanderlinden K., Ballabeni P., Gamondi C., Ramelet A.S., Borasio G.D., 2021/09. Journal of pain and symptom management, 62 (3) pp. e75-e84. Peer-reviewed.
 
Tenir compte de la finitude pour mieux accueillir les patient·e·s
Bornet Marc-Antoine, 2021/09/01. Courrier du médecin vaudois.
 
Oxford Handbook of Psychotherapy Ethics
Trachsel Manuel, Gaab Jens, Biller-Andorno Nikola, Tekin Şerife, Sadler John Z. (eds.), 2021/08/27., Oxford University Press.
 
Adapting to a New Normal After Severe Acute Brain Injury: An Observational Cohort Using a Sequential Explanatory Design.
Rutz Voumard R., Kiker W.A., Dugger K.M., Engelberg R.A., Borasio G.D., Curtis J.R., Jox R.J., Creutzfeldt C.J., 2021/08/01. Critical care medicine, 49 (8) pp. 1322-1332. Peer-reviewed.
Advance care planning by proxy in German nursing homes: Descriptive analysis and policy implications.
In der Schmitten J., Jox R.J., Pentzek M., Marckmann G., 2021/08. Journal of the American Geriatrics Society, 69 (8) pp. 2122-2131. Peer-reviewed.
Care of the adult cancer patient at the end of life: ESMO Clinical Practice Guidelines.
Crawford G.B., Dzierżanowski T., Hauser K., Larkin P., Luque-Blanco A.I., Murphy I., Puchalski C.M., Ripamonti C.I., ESMO Guidelines Committee. Electronic address: clinicalguidelines@esmo.org, 2021/08. ESMO open, 6 (4) p. 100225. Peer-reviewed.
 
Palliative care competencies and education needs of nurses and healthcare assistants involved in the provision of supportive palliative care.
White L., Agbana S., Connolly M., Larkin P., Guerin S., 2021/06/02. International journal of palliative nursing, 27 (4) pp. 195-204. Peer-reviewed.
'It's not magic': A qualitative analysis of geriatric physicians' explanations of cardio-pulmonary resuscitation in hospital admissions.
Sterie A.C., Jones L., Jox R.J., Rubli Truchard E., 2021/06. Health expectations, 24 (3) pp. 790-799. Peer-reviewed.
 
Les soignants pris dans les conflits du couple
Riat M., Dunand A., 2021/06. Psycho-Oncologie, 15 (1-2) pp. 14-16. Peer-reviewed.
 
A qualitative study on continuous deep sedation until death as an alternative to assisted suicide in Switzerland.
Tomczyk M., Dieudonné-Rahm N., Jox R.J., 2021/05/14. BMC palliative care, 20 (1) p. 67. Peer-reviewed.
 
Yes, This Is the Society in Which We Want to Live.
Borasio G.D., Jox R., Taupitz J., Wiesing U., 2021/05. Journal of palliative medicine, 24 (5) pp. 659-660. Peer-reviewed.
Assessing the Will to Live: A Scoping Review.
Bornet M.A., Bernard M., Jaques C., Rubli Truchard E., Borasio G.D., Jox R.J., 2021/04. Journal of pain and symptom management, 61 (4) pp. 845-857.e18. Peer-reviewed.
 
Help to Live instead of Help to Die
Borasio Gian Domenico, Schulte Kevin, 2021/04. Internist, 62 (4) pp. 402-402.
 
Will to Live in Nursing Home Residents: A Cross-Sectional Study with Short-Term Follow-Up in Switzerland
Bornet Marc-Antoine, Rubli Truchard Eve, Bernard Mathieu, Borasio Gian Domenico, Pasquier Jérôme, Jox Ralf J., 2021/04/01., 2021 Virtual American Geriatrics Society Annual Scientific Meeting pp. S291 dans Journal of the American Geriatrics Society. Peer-reviewed.
 
Next of kin's Reactions to Results of Functional Neurodiagnostics of Disorders of Consciousness: a Question of Information Delivery or of Differing Epistemic Beliefs?
Kuehlmeyer Katja, Bender Andreas, Jox Ralf J., Racine Eric, Ruhfass Maria, Schembs Leah, 2021/03/24. Neuroethics, 14 (3) pp. 357-363.
 
How Does Functional Neurodiagnostics Inform Surrogate Decision-Making for Patients with Disorders of Consciousness? A Qualitative Interview Study with Patients' Next of Kin
Schembs Leah, Ruhfass Maria, Racine Eric, Jox Ralf J., Bender Andreas, Rosenfelder Martin, Kuehlmeyer Katja, 2021/01/11. Neuroethics, 14 (3) pp. 327-346.
A national cross-sectional survey of constipation in patients attending cancer centres in Ireland.
Ryan K., Johnston B.M., McAleer C., O'Connor L., Larkin P., 2021. HRB open research, 4 p. 113. Peer-reviewed.
 
ARD shows "GOTT": Open Letter from Palliative Medicine & Suicide Prevention to Ferdinand von Schirach Reply
Beck Dietmar, Birnbacher Dieter, Borasio Gian Domenico, Braun Harald, Cuno Jorg, Dose Matthias, Dworzak Hans, Friedrich Daniel, Gabler Rita, Hilgendorf Eric et al., 2021/01. ZEITSCHRIFT FUR PALLIATIVMEDIZIN, 22 (01) pp. 23-4.
 
Autonomie in der Medizin: 7 Thesen
Brauer S, Ackermann S, Bally K, Hoff P, Hurst S, Jox R, Krones T, Mathwig F, Neuenschwander H, Salathé M et al., 2021. Nationale Ethikkommission im Bereich der Humanmedizin und Schweizerische Akademie der Medizinischen Wissenschaften, 11 (5).
 
Clinical Neurotechnology meets Artificial Intelligence. Philosophical, Ethical, Legal, and Social Implications
Friedrich O, Wolkenstein A, Bublitz C, Jox R, Racine E, 2021. Advances in Neuroethics, Springer.
 
Ethical Implications of Brain-Computer Interface and Artificial Intelligence in Medicine and Health Care
Jox Ralf J., 2021. pp. 155-168 dans Advances in Neuroethics, Springer International Publishing.
 
Goal-Concordant Care After Severe Acute Brain Injury.
Rutz Voumard R., Dugger K.M., Kiker W.A., Barber J., Borasio G.D., Curtis J.R., Jox R.J., Creutzfeldt C.J., 2021. Frontiers in neurology, 12 p. 710783. Peer-reviewed.
 
How Do Persons with Young and Late Onset Dementia Die?
Roβmeier C., Hartmann J., Riedl L., Dorn B., Fischer J., Hartmann F., Egert-Schwender S., Kehl V., Schneider-Schelte H., Jox R.J. et al., 2021. Journal of Alzheimer's disease, 81 (2) pp. 843-852. Peer-reviewed.
IMPACT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland.
Somanadhan S., Bristow H., Crushell E., Pastores G., Nicholson E., Kroll T., Larkin P.J., Brinkley A., 2021. Therapeutic advances in rare disease, 2 p. 26330040211020764. Peer-reviewed.
 
La psychologie et les soins palliatifs
Bernard Mathieu, Gremion Yves, 2021. Palliative Flash, 71 pp. 1-3.
 
Mitteilungen des BDI [Suizidassistenz als ärztliche Aufgabe]
Borasio Gian Domenico, 2021. Der Internist, 62 (4) pp. 397-406. Peer-reviewed.
 
Nursing education on palliative care across Europe: Results and recommendations from the EAPC Taskforce on preparation for practice in palliative care nursing across the EU based on an online-survey and country reports.
Martins Pereira S., Hernández-Marrero P., Pasman H.R., Capelas M.L., Larkin P., Francke A.L., 2021/01. Palliative medicine, 35 (1) pp. 130-141. Peer-reviewed.
 
Nursing students' first experience of death: Identifying mechanisms for practice learning. A realist review.
Gorchs-Font N., Ramon-Aribau A., Yildirim M., Kroll T., Larkin P.J., Subirana-Casacuberta M., 2021/01. Nurse education today, 96 p. 104637. Peer-reviewed.
 
Palliative Geriatrie aus wissenschaftlicher Sicht.
Kojer M, 2021. pp. 329-336 dans Alt, krank und verwirrt: Einführung in dier Praxis der Palliativen Geriatrie. 2nd, completely revised and enlarged edition., Kohlhammer.
 
Patients' decision to contribute to a biobank in the light of the patient-recruiter relationship-a qualitative study of broad consent in a hospital setting.
Bosisio F., Barazzetti G., Koutaissoff D., Spencer B., 2021/01. Journal of community genetics, 12 (1) pp. 15-25. Peer-reviewed.
 
Quality of Life in Advanced Dementia with Late Onset, Young Onset, and Very Young Onset.
Hartmann J., Roßmeier C., Riedl L., Dorn B., Fischer J., Slawik T., Fleischhaker M., Hartmann F., Egert-Schwender S., Kehl V. et al., 2021. Journal of Alzheimer's disease, 80 (1) pp. 283-297. Peer-reviewed.
 
Replik auf den „Offenen Brief an Ferdinand von Schirach“ (FAZ vom 21.11.20)
Beck D, Birnbacher D, Borasio GD, Braun H, Cuno J, Dose M, Dworzak H, Friedrich D, Gabler R, Hilgendorf E et al., 2021/01. Zeitschrift für Palliativmedizin, 22 (01) pp. 24-25.
Suicidal Ideations and Behavior in Patients With Young and Late Onset Dementia.
Ortner M., Riedl L., Jox R.J., Hartmann J., Roßmeier C., Dorn B., Kehl V., Egert-Schwender S., Fischer J., Diehl-Schmid J., 2021. Frontiers in neurology, 12 p. 647396. Peer-reviewed.
 
The Power of Thoughts: A Qualitative Interview Study with Healthy Users of Brain-Computer Interfaces
Schmid Jennifer R., Jox Ralf J., 2021. pp. 117-126 dans Advances in Neuroethics, Springer International Publishing.
Proposed Criteria for Constipation in Palliative Care Patients. A Multicenter Cohort Study.
Dzierżanowski T., Larkin P., 2020/12/25. Journal of clinical medicine, 10 (1) p. 40. Peer-reviewed.
 
Decision-making capacity evaluations: the role of neuropsychological assessment from a multidisciplinary perspective.
Wood S., Bally K., Cabane C., Fassbind P., Jox R.J., Leyhe T., Monsch A., Trachsel M., 2020/12/10. BMC geriatrics, 20 (1) p. 535. Peer-reviewed.
Planification anticipée concernant la santé chez des personnes avec une capacité de discernement limitée : revue de la littérature et état des lieux en Suisse
Bosisio Francesca, Bornet Marc-Antoine, Haunreiter Katja, Jaques Cécile, Jones Laura, Ritzenthaler Daniela, Jox Ralf, Rubli Truchard Eve, 2020/12/10., Office fédéral de la santé publique.
Citizen Responses to Government Restrictions in Switzerland During the COVID-19 Pandemic: Cross-Sectional Survey.
Selby K., Durand M.A., Gouveia A., Bosisio F., Barazzetti G., Hostettler M., D'Acremont V., Kaufmann A., von Plessen C., 2020/12/03. JMIR Formative Research, 4 (12) pp. e20871 . Peer-reviewed.
Koinzidenz von Patientenverfügung und Zustimmung zur Organspende: was wünschen die Betroffenen? Eine Befragung deutscher Senioren [Coincidence of Advance Directive and Organ Donor Consent: What Do The Persons Concerned Want? A Survey of German Elderly Citizens]
Wagner E., Marckmann G., Jox R.J., 2020/12. Gesundheitswesen, 82 (12) pp. 977-983. Peer-reviewed.
Introducing cross-cultural education in palliative care: focus groups with experts on practical strategies.
Semlali I., Tamches E., Singy P., Weber O., 2020/11/10. BMC palliative care, 19 (1) p. 171. Peer-reviewed.
Nurse-led patient education for persons suffering from a venous leg ulcer in outpatient's clinics and homecare settings: A scoping review.
Bobbink P., Pugliese M.T., Larkin P., Probst S., 2020/11. Journal of tissue viability, 29 (4) pp. 297-309. Peer-reviewed.
 
Top Ten Tips Palliative Care Clinicians Should Know About Cognitive Impairment and Institutional Care.
Schlögl M., Riese F., Little M.O., Blum D., Jox R.J., O'Neill L., Pautex S., Piers R., Way D., Jones C.A., 2020/11. Journal of palliative medicine, 23 (11) pp. 1525-1531. Peer-reviewed.
Life worth living: cross-sectional study on the prevalence and determinants of the wish to die in elderly patients hospitalized in an internal medicine ward.
Bornet M.A., Rubli Truchard E., Waeber G., Vollenweider P., Bernard M., Schmied L., Marques-Vidal P., 2020/09/14. BMC geriatrics, 20 (1) p. 348. Peer-reviewed.
'Take more laxatives was their answer to everything': A qualitative exploration of the patient, carer and healthcare professional experience of constipation in specialist palliative care.
Hasson F., Muldrew D., Carduff E., Finucane A., Graham-Wisener L., Larkin P., Mccorry N., Slater P., McIlfatrick S., 2020/09. Palliative medicine, 34 (8) pp. 1057-1066. Peer-reviewed.
 
Selbstbestimmung und Autonomie in der Palliativen Geriatrie – ein Grundsatzpapier
Heimerl Katharina, Böck Karin, Kojer Marina, Kunz Roland, Müller Dirk, Neuhaus Ursa, Röker Manuela, Jox Ralf, 2020/09. Zeitschrift für Palliativmedizin, 21 (05) pp. 243-247.
 
Advanced Care Planning: Promoting Autonomy in Caring for People with Dementia.
Bosisio F., Barazzetti G., 2020/08. The American journal of bioethics, 20 (8) pp. 93-95. Peer-reviewed.
Living Will Versus Will to Live? How to Navigate Through Complex Decisions for Persons With Dementia.
Jox R.J., 2020/08. The American journal of bioethics, 20 (8) pp. 85-87. Peer-reviewed.
 
Ethics of Psychotherapeutic Interventions in Palliative Care
Bernard Mathieu, Krenz Sonia, Jox Ralf J., 2020/07/09. dans Oxford handbook of psychotherapy ethics , Oxford University Press.
 
Development, validation and reliability testing of 'Perinatal Bereavement Care Confidence Scale (PBCCS)'.
Kalu F.A., Larkin P., Coughlan B., 2020/07. Women and birth, 33 (4) pp. e311-e319. Peer-reviewed.
Protecting physical and mental health of healthcare workers
Nicca Dunja, Zuniga Franziksa, Horsch Antje, Stuijfzand Suzannah, Bischofberger Irène, Larkin Philip, De Geest Sabina, Suggs Suzanne, Wiedenmann Margarethe, Eicher Manuela et al., 2020/06/16., National COVID-19 Science Task Force.
Social, cultural and experiential patterning of attitudes and behaviour towards assisted suicide in Switzerland: evidence from a national population-based study.
Vilpert S., Bolliger E., Borrat-Besson C., Borasio G.D., Maurer J., 2020/06/15. Swiss medical weekly, 150 pp. w20275. Peer-reviewed.
 
La question des directives anticipées lors des maladies nouvelles
Bosisio Francesca, Jox Ralf, Rubli Truchard Eve, 2020/06. Courrier des médecins vaudois (CMV) pp. 26-27.
 
Wish to Die in Older Patients: Development and Validation of Two Assessment Instruments.
Dürst A.V., Spencer B., Büla C., Fustinoni S., Mazzocato C., Rochat E., Rubli Truchard E., Monod S., Jox R.J., 2020/06. Journal of the American Geriatrics Society, 68 (6) pp. 1202-1209. Peer-reviewed.
Instruments for the identification of patients in need of palliative care: protocol for a systematic review of measurement properties.
Teike Lüthi F., Mabire C., Rosselet Amoussou J., Bernard M., Borasio G.D., Ramelet A.S., 2020/05. JBI evidence synthesis, 18 (5) pp. 1144-1153. Peer-reviewed.
Associations of end-of-life preferences and trust in institutions with public support for assisted suicide evidence from nationally representative survey data of older adults in Switzerland
Vilpert Sarah, Borrat-Besson Carmen, Borasio Gian Domenico, Maurer Jürgen, 2020/04/23. PLOS ONE, 15 (4) pp. e0232109. Peer-reviewed.
Arzneimittelprüfung an nicht einwilligungsfähigen Erwachsenen: Kritische Bewertung der neuen gesetzlichen Regelung durch medizinische Ethikkommissionen in Deutschland [Critical evaluation of the new legal regulation of pharmaceutical trials with adults who lack decision-making capacity: a survey of human research ethics committees in Germany]
Götz S.C., Marckmann G., Hasford J., Jox R.J., 2020/04. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 63 (4) pp. 465-474. Peer-reviewed.
Prevalence and Determinants of the Wish to Die among Elderly Patients Hospitalized in an Internal Medicine Ward: a Cross-sectional Study
Bornet Marc-Antoine, Rubli Truchard Eve, Waeber Gérard, Vollenweider Peter, Bernard Mathieu, Schmied Laure, Marques-Vidal Pedro, 2020/04/01., American Geriatrics Society 2020 Annual Scientific Meeting pp. S162-S163 dans Journal of the American Geriatrics Society. Peer-reviewed.
 
Swiss Families' Experiences of Interactions with Providers during Assisted Suicide: A Secondary Data Analysis of an Interview Study.
Gamondi C., Pott M., Preston N., Payne S., 2020/04. Journal of palliative medicine, 23 (4) pp. 506-512. Peer-reviewed.
 
COVID-19: decision making and palliative care.
Borasio G.D., Gamondi C., Obrist M., Jox R., For The Covid-Task Force Of Palliative Ch, 2020/03/23. Swiss medical weekly, 150 pp. w20233. Peer-reviewed.
Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study.
Hein K., Knochel K., Zaimovic V., Reimann D., Monz A., Heitkamp N., Borasio G.D., Führer M., 2020/03. Palliative medicine, 34 (3) pp. 300-308. Peer-reviewed.
 
Visualizing social support in home pediatric palliative care using network maps.
Lindemann D., Borasio G.D., Führer M., Wasner M., 2020/03. Palliative medicine, 34 (3) pp. 378-386. Peer-reviewed.
Compassion fatigue, watching patients suffering and emotional display rules among hospice professionals: a daily diary study.
Portoghese I., Galletta M., Larkin P., Sardo S., Campagna M., Finco G., D'Aloja E., 2020/02/25. BMC palliative care, 19 (1) p. 23. Peer-reviewed.
IDentification of patients in need of general and specialised PALLiative care (ID-PALL©): item generation, content and face validity of a new interprofessional screening instrument.
Teike Lüthi F., Bernard M., Beauverd M., Gamondi C., Ramelet A.S., Borasio G.D., 2020/02/12. BMC palliative care, 19 (1) p. 19. Peer-reviewed.
 
Does an Interactive, Teleconference-Delivered, Palliative Care Lecture Series Improve Nursing Home Staff Confidence?
Dowling Michael J., Payne Cathy, Larkin Philip, Ryan Daniel J., 2020/02/01. Journal of Palliative Medicine, 23 (2) pp. 179-183.
 
Le Projet de Soins Anticipé ProSA.
Bosisio Francesca, Ritzenthaler Daniela, Rubli Truchard Eve, Jox Ralf, 2020/02. Palliative Flash .
 
Using the Term "Palliative Care": International Survey of How Palliative Care Researchers and Academics Perceive the Term "Palliative Care".
Zambrano S.C., Centeno C., Larkin P.J., Eychmüller S., 2020/02. Journal of palliative medicine, 23 (2) pp. 184-191. Peer-reviewed.
What is it like to use a BCI? - insights from an interview study with brain-computer interface users.
Kögel J., Jox R.J., Friedrich O., 2020/01/06. BMC medical ethics, 21 (1) p. 2. Peer-reviewed.
 
Accompagnement personnalisé au développement de la culture palliative institutionnelle
Jox Ralf, 2020. Palliative Vaud pp. 5-6.
 
Advance Care Planning for People with Dementia: The Role of General Practitioners.
Bally K.W., Krones T., Jox R.J., 2020. Gerontology, 66 (1) pp. 40-46. Peer-reviewed.
 
Dear future self… Dementia Letters
Jox Ralf, 2020. https://www.anneliekedriessen.com/dementia-letters-ralf-jox.
 
Mapping the Healthcare Chaplaincy Literature: An Analytical Review of Publications Authored by Chaplains and Theologians Between 2000 and 2018.
Poncin E., Brandt P.Y., Rouiller F., Drouin M., Dandarova Robert Z., 2020. Journal of health care chaplaincy, 26 (1) pp. 16-44. Peer-reviewed.
Meaning in life and quality of life: palliative care patients versus the general population.
Bernard M., Berchtold A., Strasser F., Gamondi C., Borasio G.D., 2020. BMJ supportive & palliative care. Peer-reviewed.
 
Palliative care for people living with heart failure: European Association for Palliative Care Task Force expert position statement.
Sobanski P.Z., Alt-Epping B., Currow D.C., Goodlin S.J., Grodzicki T., Hogg K., Janssen DJA, Johnson M.J., Krajnik M., Leget C. et al., 2020/01/01. Cardiovascular research, 116 (1) pp. 12-27. Peer-reviewed.
 
Recht auf Selbstbestimmung und Recht auf Risiko in der Palliativen Geriatrie
Jox Ralf, 2020. Palliative Geriatrie , 6 (4) pp. 18-20.
 
Wenn Lebenszeit zerrinnt: eine ethische Besinnung
Jox Ralf, 2020. Palliative Geriatrie , 6 (2) pp. 12-15.
 
What Motivates Healthcare Professionals' Referrals to Chaplains, and How to Help Them Formulate Referrals that Accurately Reflect Patients' Spiritual Needs?
Poncin E., Niquille B., Jobin G., Benaim C., Rochat E., 2020. Journal of health care chaplaincy, 26 (1) pp. 1-15. Peer-reviewed.
Contenu des discussions concernant la réanimation cardiopulmonaire avec les patients âgés [Content of discussions about cardiopulmonary resuscitation with elderly patients]
Ferré Ibáñez M.R., Sterie A.C., Jox R.J., Rubli Truchard E., 2019/11/06. Revue medicale suisse, 15 (670) pp. 2053-2055. Peer-reviewed.
Validation of the French Version of the Integrated Palliative Care Outcome Scale.
Sterie A.C., Borasio G.D., Bernard M., French IPOS Consortium, Tamches Emmanuel, 2019/11. Journal of pain and symptom management, 58 (5) pp. 886-890.e5. Peer-reviewed.
 
Postgraduate palliative care education for all healthcare providers in Europe: Results from an EAPC survey.
Paal P., Brandstötter C., Lorenzl S., Larkin P., Elsner F., 2019/10. Palliative & supportive care, 17 (5) pp. 495-506. Peer-reviewed.
Projet de soins anticipé ou advance care planning - Proposition d’une terminologie commune pour la Suisse romande
Bosisio F., Fassier T., Rubli Truchard E., Pautex S., Jox R.J., 2019/09/11. Revue medicale suisse, 15 (662) pp. 1634-1636. Peer-reviewed.
 
Family members' experiences of assisted dying: A systematic literature review with thematic synthesis.
Gamondi C., Fusi-Schmidhauser T., Oriani A., Payne S., Preston N., 2019/09. Palliative medicine, 33 (8) pp. 1091-1105. Peer-reviewed.
Examining constipation assessment and management of patients with advanced cancer receiving specialist palliative care: a multi-site retrospective case note review of clinical practice.
McIlfatrick S., Muldrew DHL, Beck E., Carduff E., Clarke M., Finucane A., Graham-Wisener L., Larkin P., McCorry N.K., Slater P. et al., 2019/07/15. BMC palliative care, 18 (1) p. 57. Peer-reviewed.
General practice do not innovate with spiritual care: the need to move towards an embedded model
Bornet Marc-Antoine, Edelmann Naomi, Rochat Etienne, Cornuz Jacques, Poncin Emmanuelle, Monod Stéfanie, 2019/06/05., 4e congrès de printemps de la Société suisse de médecine interne générale, Bâle, 2019 pp. 41-42 dans Primary and Hospital Care. Peer-reviewed.
Perinatal Palliative Care: A qualitative study evaluating the perspectives of pregnancy counselors.
Flaig F., Lotz J.D., Knochel K., Borasio G.D., Führer M., Hein K., 2019/06. Palliative medicine, 33 (6) pp. 704-711. Peer-reviewed.
Challenges in a six-phase process of questionnaire adaptation: findings from the French translation of the Integrated Palliative care Outcome Scale.
Sterie A.C., Bernard M., 2019/04/18. BMC palliative care, 18 (1) p. 38. Peer-reviewed.
 
Regulation of assisted suicide limits the number of assisted deaths.
Borasio G.D., Jox R.J., Gamondi C., 2019/03/09. Lancet, 393 (10175) pp. 982-983. Peer-reviewed.
 
Responses to assisted suicide requests: an interview study with Swiss palliative care physicians.
Gamondi C., Borasio G.D., Oliver P., Preston N., Payne S., 2019/03. BMJ supportive & palliative care, 9 (1) pp. e7. Peer-reviewed.
 
Physicians' attitudes toward end-of-life decisions in amyotrophic lateral sclerosis.
Thurn T., Borasio G.D., Chiò A., Galvin M., McDermott C.J., Mora G., Sermeus W., Winkler A.S., Anneser J., 2019/02. Amyotrophic lateral sclerosis & frontotemporal degeneration, 20 (1-2) pp. 74-81. Peer-reviewed.
 
Application of dignity therapy in an advanced cancer patient — wider therapeutic implications
Łabuś-Centek Marta, Adamczyk Anna, Jagielska Agnieszka, Brożek Beata, Graczyk Michał, Larkin Philip, Krajnik Małgorzata, 2019/01/21. Palliative Medicine in Practice, 12 (4) pp. 218-223.
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